Experience News in a New Way
An Oklahoma couple is suing a sperm bank, because their son was born with a chronic disease. They’re hoping their lawsuit will change the way that industry does business.
Jaxon Kretchmar looks and sounds like any other 2-year-old. He loves playing with his big brother Tristan, but his playful laughter is drowned out much of his days with this sound. Jaxon was born with cystic fibrosis – a genetic, chronic disease that affects the lungs and digestive system.
The Kretchmars had used a sperm donor to conceive Jaxon. Donor n-170 that had supposedly been tested for cystic fibrosis, which they used a site for the New England Cryogenic Center, or NECC, near Boston to locate sperm. The website stated no specimen is released until the donor has been tested for the following diseases – including cystic fibrosis. But later tests revealed the donor carried two copies of one of the more serious c-f mutations.
The Kretchmars discovered donor n-170 was part of thousands of vials of sperm NECC purchased back in 1999 from another large sperm bank in Wyoming. Their website now has a note under testing for cystic fibrosis.
Right now – the FDA only mandates that sperm banks test for infectious diseases – not genetic diseases.